I know I need to update but there is never time! Not enough time for everything I want to say that is. Maci is doing well. She is such a joy to me and most days, is the only thing that keeps me from going completely insane. My life is crazy busy. Once we get near the end of having doctor visits....there are more doctor visits, or OT visits or PT or Endocrinologist or Opthamologist.....May should end all of the doctor follow ups.
If I could just deal with those alone, it would be nice. I'm battling insurance and SSI now. Maci was denied her SSI so the extra money we thought we would have to afford for me to stay at home with her....well apparently on unemployment, Rick and I make "too much money". HA HA **insert curse word** HA! They count the gross income, NOT what we actually get after taxes. I could spend an hour on a typing tangent but it will only get me irrate and upset and I really need to go to bed. We have Dialysis Clinic at 8 in the morning so it will be an early morning for Maci and she DOES NOT like to be woken up early. It makes for a grumpy baby, all day long. She goes to sleep at 10:30 or 11 at night and sleeps until 9:30 or 10 am!
I just wanted to update quickly. Thank you for the continued prayers. I know I sound like a broken record but we still appreciate them and we still can use them. So many roadblocks to face ahead and I can only hope to find some way to keep a roof over Maci's head since being denied her SSI. There is no way I can work. There is no way Maci can go to daycare or even stay with a sitter in their personal home. She has TOO MANY needs. Just her feedings keep you busy all day!
Going to bed now before my mind races and keeps me up all night. I will really do my best to better update at another time.
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