The Kidney Foundation walk on June 2nd......WOW!!!! If I counted correctly (my memory doesn't always serve me well), we had 39, yep that's THIRTY NINE people at the walk representing the Maci Moo Kidney Krew! That does of course include Maci. I was and continue to be overwhelmed by the love and support shown for my precious girl. I. Am. So. Blessed.
Those who walked, those who made a donation to the National Kidney Foundation, those who bought a tshirt to support Maci and spread awareness of kidney disease and organ donation.......THANK YOU!!!! I say I thank you from the bottom of my heart but my appreciation is much deeper !!!
I would definitely say the walk was a success. Oh! I also cannot forget to mention that the Moo Krew raised $1500 for the National Kidney Foundation!!!!! How awesome is that??????
Maci is still battling reflux. She sees the gastro doc next month unless someone cancels and I happen to get an earlier appointment. Some days aren't as bad as others with her gagging/vomiting. The last several days have seemed a tad better (hoping I don't jinx a good thing). I am not changing her clothes 3 times a day at least....usually just twice. There have been times that I could have had a load of laundry for just one day of bibs, burp clothes and cloth diapers (used for burp cloths). On the plus side, Maci is working her way through her wardrobe and wearing things twice instead of only once. LOL
She is gaining weight too so that is a relief. She had been getting sick so much that her weight was stagnant or increasing very slowly.
Tonight before starting dialysis she weighed in at 6.35 kg. That's 13.97 lbs. Whoop Whoop.
Her therapy is going well and she's getting good reports. The therapists come to the house for her therapy which makes it so much easier! This last week the good news was that Maci's muscles aren't as tight, she's not as stiff, she's putting weight on her legs better than she ever did in the past, she is focusing better and more quickly (this was huge for me because it's been such a concern after our visit with the Ophthalmologist), she is grasping and holding things now, bringing them to her mouth and face and sometimes using both hands to do so. Her stiffness has also become A LOT less frequent. She would straighten her arms a lot like she was a downhill skier and she is not doing that near as much! It's as if she changes overnight! I guess it's her just reminding me that we are on Maci time.....not Momma's. :)
I really have noticed so many changes in the last month and it's exciting. I still get emotional, every day. Sometimes because I am sad for what she has to go through, when her tummy hurts and her reflux hurts her and also because I am so thankful for her. Someone who can't even talk, who is entirely dependent on me, has changed me. Maci enriches my life every, single day and I thank God for her, every, single day. I say she is my strength because she gets me through some very rough days. God gave her to me for a reason. I am learning daily what those reasons are and being thankful. I try desperately to focus on the good stuff, big and small....especially when I feel so weighted down and burdened. Faith and patience have never been my strongest qualities but I'm learning more and more to practice Psalm 55:22. "Cast your cares on the LORD and he will sustain you; he will never let the righteous fall." (NIV)
Below is a pic of Moo At the kidney walk. Remember to be kind to your kidneys.....and one another.
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