Catch Up

Yesterday....Rick and I stayed at the hospital until 11:30 pm.  I helped with Maci's bath.  :)  It was a good day and I held her a lot. 
After her bath she wore her camo pj's.  Rick was excited.

After her bath!  Her nurse Sarah made her hair bow. 

Today has been a long day. Maci hasn't felt well. I think her tummy has been bothering her. She has been taking longer to drink her milk and they said tonight that if she continues to take 30 minutes or longer to eat, she will have to have a tube put down her nose again. She will still get to take her bottle but anything left after 20 minutes will go down the tube. They said they do not want her burning her calories trying to eat for a long time. :( It was not news I wanted to hear. Hopefully she will start eating better, especially now since she got some Mylecon drops for her tummy.

Her BUN had been continuing to go down but now has started increasing. Her Creatinine has remained on the see-saw trend...up/down, up/down.
I can only continue to pray and ask for healing for my baby girl. My Lord knows best and he will provide a way....for us to cope with whatever comes our way. I just know that my heart grows bigger and bigger each day to hold the love I have for my daughter.

Labs:

12/12

8 pm
BUN: 34
Creatinine: 2.99

12/13

4 am
BUN: 39
Creatinine: 3.30

2 pm

BUN:39
Creatinine:3.15

8 pm

BUN: 41
Creatinine: 2.71

12/14

4 am

BUN: 42

Creatinine: 3.08

NOON
BUN: 42
Creatinine: 2.76

8 pm

BUN: 40

Creatinine: 2.86



They are also changing Maci's dialysis again. She had gone from 24 hours a day dialysis to having a 12 hour rest, then changed to having only and 8 hour rest and tomorrow will be going back to 24 hours. The nephrologist said that this is all a trial and error time and she may just need to have the amount of fluid she takes in for the dialysis increased right now and be on dialysis 24 hours a day instead of lower volume amounts with a longer rest. He said this is "normal" so I guess I won't worry.

I didn't get much sleep last night since we got home late but I enjoyed every extra minute with My Maci Moo. 
Today has been a hard day for me (emotionally) for some reason and I have attributed it to lack of sleep.  I have just really been wishing I could take my baby home and have her home for Christmas.  I keep getting flooded with thoughts of all the cute clothes she can't wear because of being in the hospital and having wires and tubes.  I get sick over the thought of having to go back to work and not being able to spend the day with her and only having a few hours before bed to spend with her.  Yet I am so thankful to have her here at all!  I do count my blessings....I just have up and down days and today has been kinda on the down.  I think I need a good cry and let it out of my system and perhaps I will be good to go for another couple of weeks. 

Please keep praying for my Moo.