Saturday Evening Post (Not A Norman Rockwell Version)

Maci is currently getting a unit of blood.  Her hematocrit dropped.  Anytime when it's below 30 you are a candidate for a transfusion and hers was 25; normal is 50-53.  From my understanding thus far, due to the kidneys failing to function in filtering the blood, you can be anemic and not produce red blood cells, lowering the hematocrit.  This will be her 4th transfusion. 

Maci had a problem with some new formula they introduced earlier this week.  They increased the calories and the volume and all that day she had a good bit of "spit up".  It turned out it was just a formula intolerence but they put her on IV fluids only to let her tummy rest.  Since they planned surgery yesterday, she couldn't have formula until after.  Today was the first day she had formula.  She was going to get to bottle feed for the first time but I guess from her being awake all afternoon, having a big day chatting with Mommy, she was too tired to wake up to eat.  We are going to try the bottle again tomorrow.  She still has her NG tube (tube running down her nose into her tummy) so that's how she got to "eat" tonight.

Now, as I type, I can see my baby girl laying in her bed sleeping soundly. I sure do love her more than anything, tubes and all.

That's a pic from today as I was holding her, chatting.  Today was the first day she had both eyes open for a long time....I loved it.