Trucking Along

I finally feel rested today.  I slept in a bit longer than I had intended but guess what, I finally didn't feel so guilty.  LOL  I even put on make up today.  **shocker**

Maci is doing well.  She drained well yesterday and last night and is doing pretty good so far today.  She is napping at the moment and it's the first time in a long while that I don't feel like napping also.  Dr. Eison laughed this morning when I told him that I was just going to stop stressing out when Maci took a step backwards because I have learned that the only thing I can count on is that she is going to be inconsistent.  LOL  She goes backwards and always seems to bounce back, thank goodness. 
We are still at 40 mLs of dialysate and if she continues the way she's been going the past couple of days they will increase again sometime this week. 
Maci was a little puffy yesterday but isn't today and she lost weight last night.  I never realized the difficulty of fluid balance until Moo.  We want her to gain weight so she can get a transplant but we want it to be real weight, nutritional weight, not excess fluid.  When she has excess fluid they have to back down on her feeds and then adjust the calories and when the fluid comes off increase feeds, adjust calories......LAWL it's a vicious cycle.   

Moo was so playful yesterday and was a lot more vocal then she ever has been.  It was quite enjoyable to see her happy and vigorously smacking her keys that hang over her in the bed.  She's getting much better with her hand/eye coordination.  She's also gotten even better with head control as well!  I am so proud of my girl.

I have found a group online of moms who have children with kidney issues.  I haven't had a lot of opportunity to read but so far what I have read, it's been encouraging.  It's nice to read things about others who are going through the same or similiar situation and have encountered things that we have experienced with Maci.  It's made me feel less "alone".  Not that I do not feel the love and support from family and friends, this is just a different kind of support...if that makes sense.

For the time being, as Dr. Eison says....take one day at a time.  That's the plan.