My poor baby has a cold. Her little nose gets so stuffy and to listen to her breathe with the stuffiness makes me sad. I suppose misery loves company because I'm sick also. YAY!
The "bubble" has been breached.
Maci missed out on her first Halloween trick or treating because of being sick. I didn't want to spread germs. :(
Learned recently that sometimes people will show complete disregard for a child and their need to remain as healthy as possible. Another mom of a kidney kid encountered the same recently. I just don't get it. Then again, if I did that would make me like them. That's not a way I wish to be. I guess I just need to be reminded of Romans 12:2.
Every where I turn I see others with a need for self gratification and support for their careless actions, I only wish my child didn't suffer at the hands of such blatant lost souls who's outright demonstration of blasphemy is appalling.
The two faces of people who claim to care for you, for your child, it's not pretty. It's become painfully obvious to me, that to some, no matter how much you do, how much you try, despite your sincerity their feelings will never be reciprocated. You are the enemy, yet the deception shown to your face, is Hollywood actor worthy. Multiple instances have been brought to my attention and it is now time to prevent further disappointment and do the bare minimum. No more, no less. My battle is over and I admit defeat. My energy will happily be spent where it's wanted and needed.
It's just disheartening. So many things, lost. So many people, lost. I only pray that along the way they see their path is one of destruction and turn from it....the pretty little liars.....I pray for their salvation.
The holidays are just around the corner. Last year at Thanksgiving and Christmas, our time with Maci was spent in the NICU. I'm so happy to have her home this year! Next year I hope to be thankful to have her home with a new kidney!
The next few years I want to enjoy yet I find myself wishing them passed. I'm so anxious for the "big picture". I want school to be finished and to have a better way and more options for earning a decent living while doing something rewarding. I want to know Maci's kidney is working and lasting. I want to be living near the coast, in Alabama, raising my girl. It will hurt my heart to leave some but I know we will be happier! Maci deserves a good life and with her already obvious love of the water then by goodness, the Gulf of Mexico here we come.
Now, on to getting through Maci's first birthday!
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