Sunday, December 27, 2015

End of the Year Update

On November 30, 2015, Maci lost her first tooth!  It was one of her bottom, center teeth.  It worried me, so I, being the overly concerned mother called her Nephrologist, Pediatrician and dentist.  Maci just turned 4 years old on November 19th and I thought it was too early to loose teeth; apparently it's not.  Better safe than sorry, right?
The tooth fairy has still not visited because the tooth fairy is still in denial!

On, December 14th, 2015 we had our semiannual visit at Children's of AL.  They have a new Nephrologist that we met and he's impressive.  Of course he got my "where did you come from?", "where did you train?" and the other 98 questions.
I was always impressed with Dr. Feig (who's credentials include Princeton undergrad, Harvard Medical and training at Boston Children's Hospital).  He is the Director of Nephrology and Medical Director of Renal Transplantation.  The new doc, Dr. Seifert, also trained at Boston Children's and is involved in transplantation.  He was very pleasant.
So unlike in Memphis, the Nephrologists trained in transplantation are part of the transplant surgery.  I just think this is a neat difference.
The one thing that I love bout COA is that everyone is so nice, detailed, happy to answer any questions and thoroughly explains things in a way you understand.  The surgeon, Dr. Young, is really personable as well.  

No real news to report from our visit.  Maci had grown and gained a little weight since our last visit in June so again, they were pleased that she's growing.  When we were there in June, they had not been doing as many transplants as what is usual for them due to the change in allocating organs.  Since June, "transplant business" has picked up.  Maci still has a high percentage of antibodies so nothing has changed there which continues to make finding a match difficult.  I have never been in a hurry for her next kidney so I remain patient and know the time will come.  My wishing it, or rushing it won't change God's timing so I leave it up to Him.  

On December 23, 2015, Maci lost her second tooth.  It was loose and finally fell out.  Unfortunately, it was either lost or he swallowed it.

Maci has had a great year.  She's been off dialysis for over a year now and it's been amazing.  It is such a blessing, as is she.  She is changing so much and is so happy almost all of the time.  She laughs at herself and will belly laugh and it makes me wish I knew what she was thinking.  She responds to more and is doing more communicating (in her own way).  She still loves music.  We still have to listen to Uptown Funk and Something Bad  on loop but she will change things up with some Veggie Tales and Adele 25.

Maci had a very nice Christmas.  Thanks to Maci's wonderful sponsor, Christina, through The June Brandy Foundation (, Maci will be enjoying new toys, new shoes and a new wardrobe!  One of the toys is like one Maci loved to play with but after her getting sick on it many times, it finally stopped working.  She has a new one now and her own "TV remote" that makes sounds that she has found entertaining.  I am very humbled and appreciative of the wonderful gifts provided this year.  Since I am sill in nursing school and unable to work, this was a tremendous blessing.  Unless Maci has a significant growth spurt, she will enjoy her clothes for this winter AND next.  WOO HOO
If you ever want to donate to a wonderful cause, check out The June Brandy Foundation or at least follow their page.  The Facebook link is above.  :)

I can never thank you all enough for your prayers, concern, support and following of and for my girl.  I truly believe she has thrived and done so well because of the outpouring love and support we have for her and my family.  THANK YOU!

No comments:

Post a Comment